Eight-year-old Ava Crainie has used her creative flair to raise funds for children like herself in this year’s Telethon. Ava was one of four children to create donation cards by drawing inspiration from their own experiences of having a medical condition. She lives with Cystic Fibrosis, a rare disease that primarily affects the lungs. She…
Tag: cystic fibrosis
Charleston-area man reaches new heights after double-lung transplant cures 40-year ailment
CHARLESTON, S.C. (WCIV) — “It’s probably a cliché, but it’s very, very true.” That’s 40-year-old John Hoffman’s response when asked about his recent recovery and rebirth following a double-lung transplant. “I was diagnosed with Cystic Fibrosis when I was two years old,” says Hoffman at his James Island home. About three years ago, his health got…
Boy Battles Cystic Fibrosis, Helps the Homeless
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Make-A-Wish, community members build barn for girl with cystic fibrosis
Alene Campbell, a 9-year-old with cystic fibrosis, cut the bright blue ribbon to officially open her new barn Saturday, made possible through the Make-A-Wish Foundation, Lowe’s Heroes and community volunteers. Source: Make-A-Wish, community members build barn for girl with cystic fibrosis
Jarvis Landry: ‘It means everything’ to help fight for a cure for Cystic Fibrosis
Cleveland Browns wide receiver Jarvis Landry is supporting the fight for a cure to Cystic Fibrosis. Source: Jarvis Landry: ‘It means everything’ to help fight for a cure for Cystic Fibrosis
Helping Families with Cystic Fibrosis, Crossing for a Cure is a 70-Mile Paddle with Heart
This year’s Crossing For A Cure™ will take place on June 14-16, 2018 and will span a 70-mile paddle from Bimini to Florida in order to raise funds and awareness for families with Cystic Fibrosis. Source: Helping Families with Cystic Fibrosis, Crossing for a Cure is a 70-Mile Paddle with Heart
Make-A-Wish grants Hemet teen with cystic fibrosis a pool
Press-Enterprise Make-A-Wish grants Hemet teen with cystic fibrosis a pool Press-Enterprise 13-year-old Ryan Schwyzer of Hemet, who has cystic fibrosis tries on Hemet Fire Department fire gear and receives an above ground swimming pool through the Make-A-Wish Foundation in Hemet Thursday, August 17, 2017. Source: Make-A-Wish grants Hemet teen with cystic fibrosis a pool
Despite her need for a lung transplant, she was determined to get her college degree
More than one doctor had told Blaire Strohn to quit school. As a teenager, she’d already lived longer than many others with the serious progressive genetic disease, cystic fibrosis, that has left her with the use of only a fifth of her lungs. “I was like, that’s not me, I’m not a quitter,” Strohn says…
A young father with ‘80-year-old’ lungs has only one wish
Cystic fibrosis makes breathing difficult and living a regular life near impossible, says Andres Perez, 29, who is asking for gift cards, clothing and baby items to help support him and his family after lung transplant surgery. Source: A young father with ‘80-year-old’ lungs has only one wish
Georgia Cystic Fibrosis survivor celebrates turning 50, hopes for lung transplant
When Nicole Kelly looks back on her life, she gets emotional. Because she’s still here.”I’ve been hospitalized, honestly about 150 times,” the Grayson single mother says. Cystic Fibrosis survivor celebrates turning 50, hopes for lung transplant”But looking back, when people ask me, the tears come,” Kelly says. “Because I always have to fight for the…