Josie-Mae, aged 3, has a rare form of epilepsy that has led to her being resuscitated 20 times.
Lyz Cund’s three-year-old daughter Josie-Mae was diagnosed at the age of one with Dravet Syndrome.
Josie-Mae suffered months of seizures and blue light ambulance trips to hospital and has been resuscitated 20 times.
Lyz, aged 38, said: “The fact that Dravet Syndrome is not well known or understood, even in hospitals, has made things even tougher.
“There have been times when I’ve taken Josie to A&E and the children’s ward and I’ve explained to medics that she has Dravet, rather than another type of more common epilepsy, but they haven’t heard of it, so I’ve felt completely dismissed, they’ve looked at me like I’m mad.Source: Redditch mum raises awareness of daughter’s rare form of life-limiting epilepsy