With big Kickstarter success, a Sandwich mom writes a book explaining to her daughter with rare Moebius Syndrome about differences in children.
After Katie Lockwood’s daughter was born with rare Moebius syndrome, the mother simply wanted her Rose to be able to see herself and others like her in a book: “Books are how we learn, books are how we make connections to the world and to each other.”
But Lockwood couldn’t find any children’s books about the condition. So the Sandwich resident, who has worked for years in special education and with disabled children and adults, last month turned to Kickstarter crowd-sourcing for help and raised more than $23,000 to create “Why Me, Mama?”
The amount was nearly four times her original goal, and she had clearly hit a nerve: Many of the donations came from parents and small organizations also connected to a condition that the Moebius Syndrome Foundation estimates affects 2 to 20 children per 1 million births.